The report was written by the World Heart Federation on behalf of RHD Action. It provides a ‘snapshot’ of the people, policies and programmes that are working to prevent and control RHD around the world today. It features interviews with the people at the heart of the RHD community: both those living with RHD and the health workers who care for them.
There is a section on this issues in South Africa written by Dr Liesl Zühlke, Paediatric Cardiologist, Red Cross Children’s Hospital and Groote Schuur Hospital and University of Cape Town; Co-Director, RhEACH
You can read the report in full here.
Extract from the South African Section of the Global Status Report
The Awareness, Surveillance, Advocacy and Prevention (ASAP) programme continues apace in South Africa, with each of the four pillars served by a programmatic area. The programme’s strong record of surveillance projects continues with INVICTUS, which is the most ambitious RHD registry project launched to date. South Africa is also moving ahead in terms of research through the RHDGen project, which is studying the genetic makeup of people living with RHD, in order to identify people at high risk of developing RHD so that they may be prioritised for preventive treatment.
Advocacy for people living with RHD is another priority for the future. The South African programme has a good track record of including and empowering these communities: for example, the findings of the REMEDY study and RHDGen are being communicated to participants living with RHD before being released to the wider scientific community.
Patient advocacy will be a central theme during 2016’s annual congress of the South African Heart Association in Cape Town. A consortium of RHD organizations, including RHD Action, will invite 150 people living with RHD to join the congress for a morning of mobilization and advocacy, providing a venue for people living with RHD to better understand and manage their disease, network with their peers, and strengthen their relationships with the RHD research community.
The NDoH Essential Medicines Programme request comments on the the 3 chapters of the hospital level standard treatment guidelines (STG) essential medicines list (EML). Click here to view drafts
- Chapter 3: Cardiovascular conditions
- Chapter 14: Neurological conditions
- Chapter 15: Psychiatry conditions
Reviewed by: the National EML Committee (appointed by the Minister)
Version reviewed: STG and EML Hospital Level, Adults (2012 edition)
Target users: doctors and nurses providing care at district and regional hospitals to provide access to pharmaceuticals to manage common conditions.
Aim of comment: to identify of gross errors, particularly diagnosis and treatment. Completion of a short motivation to substantiate any comment made is recommendations made.
Where an alternative medicine is recommended, this should be supported by appropriate evidence.
See updated guideline for the Motivation of a New Medicine on the National EML.
Comment by: 8 May 2015
Submit comments to: Trudy Leong, Tel: 012 395 8287 Fax to e-mail: 0862484875 E-mail: [email protected]
The NDoH Essential Medicines Programme request comments on the the 3 chapters of the hospital level standard treatment guidelines (STG) essential medicines list (EML). Click here to view drafts
- Chapter 3: Cardiovascular conditions
- Chapter 14: Neurological conditions
- Chapter 15: Psychiatry conditions
Reviewed by: the National EML Committee (appointed by the Minister)
Version reviewed: STG and EML Hospital Level, Adults (2012 edition)
Target users: doctors and nurses providing care at district and regional hospitals to provide access to pharmaceuticals to manage common conditions.
Aim of comment: to identify of gross errors, particularly diagnosis and treatment. Completion of a short motivation to substantiate any comment made is recommendations made.
Where an alternative medicine is recommended, this should be supported by appropriate evidence.
See updated guideline for the Motivation of a New Medicine on the National EML.
Comment by: 8 May 2015
Submit comments to: Trudy Leong, Tel: 012 395 8287 Fax to e-mail: 0862484875 E-mail: [email protected]
After months of painstaking work, the result of the South African Civil Society NCDs Benchmarking exercise is out for your comment. While every effort has been taken to ensure that this draft is correct and supported by documentary evidence and other input, we apologise in advance for any errors.
We sincerely ask for your input to ensure it is as accurate as possible. Written input using the item number concerned is most welcome.
Click here to download The attached draft copy of the SA Civil Society NCDs Benchmarking Exercise for your constructive comment and correction by 11 November 2014.
This NCD Benchmarking Exercise aims to assess the national capacity for responding to NCDs – from a civil society perspective.
It is framed to complement national reporting processes on NCDs, as well as WHO monitoring on NCDs.
It includes elements of the NCD national response/capacity that are not reflected in official government/WHO reporting, such as elements that relate to civil society organization engagement and capacity.
The benchmarking tool was developed in consultation with an expert working group of the NCD Alliance.
It is piloted as part of the NCD Alliance programme “Strengthening Health Systems, Supporting NCD Action” in Brazil, the Caribbean Community and South Africa.
The programme is funded by a generous grant from Medtronic Philanthropy.
Please return comments to Vicki Pinkney-Atkinson
After months of painstaking work, the result of the South African Civil Society NCDs Benchmarking exercise is out for your comment. While every effort has been taken to ensure that this draft is correct and supported by documentary evidence and other input, we apologise in advance for any errors.
We sincerely ask for your input to ensure it is as accurate as possible. Written input using the item number concerned is most welcome.
Click here to download The attached draft copy of the SA Civil Society NCDs Benchmarking Exercise for your constructive comment and correction by 11 November 2014.
This NCD Benchmarking Exercise aims to assess the national capacity for responding to NCDs – from a civil society perspective.
It is framed to complement national reporting processes on NCDs, as well as WHO monitoring on NCDs.
It includes elements of the NCD national response/capacity that are not reflected in official government/WHO reporting, such as elements that relate to civil society organization engagement and capacity.
The benchmarking tool was developed in consultation with an expert working group of the NCD Alliance.
It is piloted as part of the NCD Alliance programme “Strengthening Health Systems, Supporting NCD Action” in Brazil, the Caribbean Community and South Africa.
The programme is funded by a generous grant from Medtronic Philanthropy.
Please return comments to Vicki Pinkney-Atkinson
